Tuesday, August 30, 2011

Taylor



Here is our cute Taylor Marie! But usually we see her like this:



This girl is full of so much energy! She was pretty sick last week (just a fever...not at all related to the story below) and anyone that saw her in her lethargic, exhausted state knew that something was definitely wrong. That was not the Taylor Marie that we all know and love.

We learned some interesting things about Taylor this summer. She has what we (hopefully respectfully) call the Michael Jackson disease: Vitiligo. She's had these little white spots all over her body, but mostly around her knees, for quite some time and this summer we really noticed that they had gotten bigger and even spread. When I saw the one on her eye I knew I wanted to get her right in. We have tried a couple of different things and have recently had huge success with a certain cream we've been trying. I wish we could get decent pictures to show the difference between this first picture on Matt's camera phone:



and the pictures below where the pigment is starting to come back where her hair follicles are. It is so interesting. These spots used to be pure white...which is scary for a girl that loves to be in the sun, but we have kept sunscreen on her and tried to do just as the Doctors say.



My dad was visiting with a sweet lady in California who had the same thing. It seems like now there are more and more treatments for it but when she was young there weren't any and so hers has spread all over. She and her husband were talking about how maybe they should spend the thousands of dollars to treat it, but as they thought about it the husband had said something like, "You know....I fell in love with you and married you because of who you are. Whether you have the spots or not I'm still gonna love you!" They decided to not mess with the treatment.

We thought that was a sweet story. Taylor has such spunk and energy that people just love her for who she is. It's been nice to know what this is and yes, even see some results, but if she were to live with this her whole life she is definitely the type of girl that really wouldn't care! She is so care free and full of life that she will take whatever comes her way!
Love you Taylor girl! You are beautiful inside and out!

1 comment:

Meggen said...

Taylor, Taylor, love that girl!